Saturday, May 31, 2014

FUNCTIONAL ADULT

A friend of mine recently posted a quote on Facebook that really spoke to me: “Pretending to be a functional adult is exhausting!” Just read the following account & you’ll see why. J

Since the inception of my blogging, I have resisted bringing the fact that I am a family caregiver for my father into my writing. I’ve wanted my blogging to be uplifting, amusing, sarcastic & just plain fun.  Caring for an elderly parent isn’t something that you would think usually falls into any of those categories.

BUT when you really think about it, the truth is that every single one of those things enter into the process of caregiving. Even though I’ve been involved in caring for my father for many years now, I don’t want to be labeled as a “caregiver”.  I am literally fighting to NOT be categorized primarily as a caregiver. Yes, that is part of who I am but I won’t let it define me.

For the past eight years my father has not been able to live alone. This man has dealt with more health issues than anyone should have to endure. Yet for the most part, he keeps a relatively positive attitude although he does seem to work at driving me crazy on many occasions. J I won’t go into all the details or I would be sitting here typing for days. He has had a stroke, two back surgeries, a shunt placed in his head & is unable to walk without a walker (& that doesn’t include the past six months). Fortunately, he is still mentally pretty sharp at 85 years old.

We have had someone live with him to assist him in the mornings & evenings – & just be there in case he needs help. Again, I could write two books (maybe more) with all that I have learned & figured out to care for him over the years. Offering a free room & a small salary to someone who needs to get back on their feet or a college student has been a godsend to us in getting my dad the minimal care that he needs. I come in every other weekend & a few weeks a year to give the live-in caregiver time off.

Unfortunately, we have moved to another stage of caregiving these past six months. Maybe I’ll go into more detail as time goes on – or maybe I won’t, I don’t know. The Reader’s Digest version is that he has been in one hospital or another eight times in the past six months. It started with cellulitis, then gangrene in a toe, hyperbaric oxygen treatments, clogged arteries in his leg, a toe amputation, more trying to clear the arteries, more hyperbaric & finally a transmetatarsal amputation (the front third of the foot). Following that, since he couldn’t keep weight totally off the foot using a walker, the wound completely opened up.

As of this writing he is getting six weeks of IV antibiotics at a rehab facility. He has been to UCSF Medical Center in San Francisco for evaluation & had yet another procedure done. BUT this past two weeks, small miracle that it seems to be, the wound is suddenly beginning to heal on its own. His doctor is guardedly optimistic that we may avoid a below the knee amputation.

So, you can see how that pretending to be a functional adult quote above resonates with me. Even though I am 64 years old, I’m still not sure when I became the “functioning adult” in charge & it sure as hell is exhausting! When I was around 12, I remember thinking that I couldn’t wait until I was grown up like my mother who always seemed to be in total control. Now, that I am grown up (debatably), I think it was all a smoke & mirrors thing with her – I doubt she felt any more in control than I do! Poor woman!

Thank God for Charley. Who would have ever thought that a 2-1/2 year old would be the reason for keeping my sanity relatively in tact?